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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Monday, June 7, 2010

Dear Sydney,

This morning was a tender morning for me. Often times throughout the night I would wake up and look at you (I convinced your Dad to let you sleep in our bed because I don't worry as much if I have you right next to me) and think how beautiful you are. What a true blessing you are to our family. You have changed our lives forever even though you have only been in it for 7 weeks. Everyday I worry about you. Are you breathing ok? Are you eating as much as you usually do? The doctors tell me to watch to see if you start sweating so I am constantly feeling your forehead and temperature to make sure that everything is normal. So far, so good. I get nervous for the day that you do start to show signs of struggle and I pray every day that I will know what to do when that day comes.

I hope you know how much your Dad loves you. He always offers to change your diaper (even if it's a stinky one) and he loves to feed you. The minute he walks in the door from school he takes you away from me so he can hold you for a while. He'll always tell you how much he misses you while he's away. He talks to you about the things he wants to teach you and how beautiful he thinks you are.

As I type this you are sleeping on the couch. You fell asleep while eating your bottle so you have milk running down your cheeks. Don't worry, you still look cute. I am so glad that you have continued to eat normally. I worry that the day will come when your appetite will go down and that will mean that surgery is not too far away.
Sometimes though I wish the surgery would come sooner than later because then the worrying would be over. I also want it to come sooner because I don't want you to be able to realize what is going on. I don't want you to be afraid of the Doctors, the tests, and I mainly don't want you to be afraid for the day when they take you away from me and Dad to do the surgery. I think it will be easier on me if I know that you aren't scared. Thinking of the day you'll have surgery is a difficult thought for me. I can't think about it without crying. I just want you to be ok.

My prayers have changed. I now pray for the doctors that work with you. I thank Heavenly Father for the doctors' education, their steady hands, and the motivation they had to stick through medical school. I pray that as they work with you, that they will be inspired just like Dr. Moore was inspired to have an echocardiogram done on you even though it seemed as if nothing was wrong. He told us he just had a feeling that he needed to do this test. I am eternally grateful for that man. I consider the whole process of how we were led to that Doctor a miracle. I will tell you that story tomorrow since I have already written too much already.


I love you more than words can ever say. Love, Mom
P.S.......



Yes, this picture is a crack up. I LOVE your face! It's as if you are sayingto me "NO! DON'T MAKE ME DO IT!" Oh, my sweet little girl. I'm sure we'll have many of these types of moments in the future. Oh boy...

1 comments:

Jed and Kera said...

Oh Natalie. I am sure many hearts will be filled with love and faith through Sydney's blog. I really wish we were there. I don't know what I could do to help, but being this far away only gives me the option to pray for you all and keep your names in the Temple. She is such a pretty little thing! We love you.

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