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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Monday, June 14, 2010

Dear Sydney,
Walking. That's about what our day consisted of today. We took advantage of such a beautiful day by going on two walks. As always, you loved it.
Yesterday you ate so well. Every bottle we gave you, you would eat it in minutes. Today, on the other hand, has been a different story. You'll eat but you won't eat the full amount of what you normally do. I just really want to get to the Dr. appt on wednesday. I feel like I over analyze everything you do but at the same time, I feel like I HAVE to over analyze or else I might miss a sign that you are doing worse.
You have been perscribed two medicines by the doctor. One helps your liver go back down to size and the other helps your lungs. One of the medicines you take twice a day and it is made up of 11.6% alcohol! This will be the only time in your life that I will be ok with alcohol entering your body! Ha. Sometimes I think you feel a little "loopy" from the medicine. Hopefully you won't have to be on it for too much longer. The other medicine you only have to take once a day and I think it smells like suckers. Yum.
This picture was taken a few days ago at the same time as the pictures in the previous post. I am showing you this one because I think does a good job of showing how long you've gotten. I think you are going to be one tall little girl! I am anxious to see what percentile you fall into for height. We'll find out on Thursday when you go to see your pediatrician. When it comes to weight you have always been near the 5th percentile range. But we are all hoping that changes soon.
It is getting late and it is time for all of us to go to bed. You especially. I love you little Syd.
Love Always,
Mom

1 comments:

Jed and Kera said...

I hope you don't get tired of all my comments. :O) Anyway I can't believe how tall Sydney is! Give her a few months and she be as tall as Dalton. He has his mommy's stubby legs!

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