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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Sunday, June 13, 2010

Dear Sydney,
You and I both went through two sets of clothes today. Let me just say this, you've got some power! Your Dad hat quite a time changing your diapers today. The minute he'd get done changing one diaper- you'd dirty another! Way to keep him on his toes! We also gave you a bath today. You love bathtime. Afterwards, we wrapped you in a towel and got you so snuggly and warm. But then, it happened. The spew. All. Over. Me. Yes, I was covered in throw up and you were too. So we got you back in the bath for the second time and you were as happy as could be! I have been trying to figure out why you have been throwing up so much lately and I have noticed that you throw up on the days that you eat a lot. I guess your little tummy just can't handle a whole lot of food.

The doctors don't want us to have you around a lot of people in fear that you might get sick. Because of that, we haven't taken you to church. Dad and I go to church in shifts. When he is at church, I stay home with you and while I am at church, he stays hime with you. Well, today while I was at church, Dad took you for a walk. He said that you slept the entire way...which I am not surprised considering that you have only been awake for a total of about 3 or 4 hours today. You have been one sleepy girl. Sometimes I worry that you sleep so much because of your heart. Drowsiness is a symptom. But then I try to make myself feel better by telling myself that you are probably just growing and you need your beauty rest.

I am looking forward to your Dr.'s appt on wednesday. As hard as it is to go and hear what they tell us, I get an update on how you are doing and that's what I care about the most. It usually takes me a few days to recover from each of your Dr. appointments. I have to cry it out and process what they tell me and then I am ok. Good thing you don't really know what's going on or you would think that you had one crazy lady as a mom.

Dad and I love having you around. Today we all 3 sat on the couch and laughed at the funny facial expressions you would make. You bring us so much joy. We love you.

Love always and forever,
Mom

1 comments:

Jed and Kera said...

Who needs a TV right?? :O) That's our motto here. :O) We don't even have cable anymore because we watch Dalton so much.
:O)

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