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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Tuesday, June 8, 2010

Dear Sydney,

Today is your Dad's birthday. He turned 25 today. You helped me this morning as we made him an omelette for breakfast and wrote him notes about reasons why we loved him. You are one lucky girl to have him as a dad. Right before we sent him off to school, the three of us danced to "Happy Birthday" by New Kids on the Block. It's a tradition that got started at Grandma Moon's house when all of her kids were little and we aren't about to let the tradition die...even if the song is a little cheesy! You must have thought the dance was boring though because the minute we started dancing you fell asleep. :)


I told you yesterday that I would tell you about how we were led to Dr. Moore. So, here you go- When we found out we were having a baby I debated whether I should deliver you at Madison Memorial Hospital which is only 5 minutes away from our house or go down to Idaho Falls at EIRMC. For various reasons I decided to deliver at EIRMC (Miracle #1). So I found a Dr. who would deliver there and her name was Dr. Huggins. She is the doctor that delivered you. You were born on an early Saturday morning (miracle #2) at EIRMC. Dr. Moore just happened to be on-call that weekend (he rotates on-call shifts with two other doctors) and he spent a lot of time with you and listening to your heart.


The next morning after you were born he came in and told us that he picked up on a very quiet heart murmur that was almost impossible to hear (miracle #3) and that it should go away within the day. Well, a day went by and it never went away. Then the next morning he came in very early with a shirt and tie on (it was clear he was on his way to church) and he apologized for coming in so early but he had some meetings to get to. He just wanted to tell us that he felt strongly to have an Echocardiogram done on your heart (miracle #4) even though you weren't showing any other signs of a heart defect other than a murmur. Murmurs, by the way, are very common with babies. So the Echo was done and they discovered a 6 mm hole within the two ventricals of your heart. Sydney, I truly believe Dr. Moore had the spirit with him that day. Something told him to pay closer attention to you and that's what he did. I don't know if any other doctor would have been so careful with you at that time. He explained to us that the bigger the hole in a heart, the harder it is to hear because the pressure going through the hole is smaller. If the hole in your heart was small then it would have been a very loud sound because the pressure is a lot greater. That is why it was so difficult to pick-up on your defect because your hole is very large. Heavenly Father led us to that doctor and I am forever grateful.


You threw up everywhere this morning. I never knew so much stuff could come out of you. I hate it when you spit up like that because I want you to keep every ounce of food in your body that you possibly can. You have a hard time gaining weight. I don't know if that is because of your heart defect or not. But because you don't gain weight very easily I have tried to make eating easier on you by not having you nurse anymore. Instead I pump my milk and feed it to you in a bottle and then I add 1 1/2 ounces of formula to every single one of your bottles. I have noticed a difference in your weight gain. You are growing much faster now and your cheeks are starting to fill out. You still can only fit into your newborn clothes though. Your 0-3 month clothes are still very big on you. I love to watch you eat. You have your own personal cheerleader as you eat... I am always telling you to keep going, just a little more, eat baby eat, etc. I just want you to be as healthy as possible when it is time for you to go in for surgery.


I love you. Your Dad loves you. I love your Dad. I hope you know that. I hope you can feel the love that surrounds you every day.

Love, Mom

5 comments:

Moonmagic said...

Dear Sydney, I think your dad is very handsome, and I think you and your mom are very special for continuing the crazy Happy Birthday tradition that was started oh so long ago. I am glad you are spitting up now you can use the hundreds of burp cloths that I made (he he he) just kidding, no spitting up, keep it in your sweet little tummy, we want fat cheeks(top and bottom).Grandma Moon loves you!

The Graham Family! said...

I LOVE reading your blog Natalie. You are soo much stronger than I would be. You guys are so blessed to have little sydney! She is adorable. I have to admit I cry with almost every post you put up! Maybe I'm just overly emotional haha! I can tell you guys definitely have the spirit there to guide and comfort you through this trial. We hope Jordan has a wonderful birthday and that you guys get to have a fun time!

Unknown said...

Dear Jordan,
happy birthday
Dear Natalie,
I love you so, so, so much! You are my hero
Dear Sydney,
You are one lucky little girl to have the parents you do! Be good to them.

Jed and Kera said...

Happy birthday Jordan!!
Natalie I really love this blog! I'm so happy you have found an outlet to let some of your emotions out. Dalton had a really hard time gaining weight at first. He didn't fit into his 0-3 month clothes until the week before he turned 3 months. Now he is 13 months old and is mainly in 18 months clothes! :O) Little Sydney will be pleasantly plump soon!

Cori said...

Dear Natalie
You did it again, I am once again crying. But also cheering that you did the happy birthday dance!! The question is, did Jordan sing along?

Dear Sydney,
You are getting so big, even Uncle Colin noticed and if he notices then it must be a big change!! I know Tyler is just waiting for you to join him on the floor so you can roll around together! So please eat as much as you can (this is where we want those darn Moon genes to kick in, just for a few months) so that you guys can play and poor Alexa can just give you a big kiss, she is dying over here. We love you Miss Syd!

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