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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Thursday, August 12, 2010

Dear Sydney,
We are still here in the CICU (cardiac intensive care unit). Your breathing tube is out, your catheter is out, the central line that was going through your neck and into your jugular is out, and your arterial line will come out later today. You are making progress. We couldn't be more proud. You were supposed to get out of the CICU today but in your x-ray this morning it showed that you have quite a bit of fluid in the left side of your lungs. For that reason- they are going to keep you for another day in here. Which I am ok with. I like having them watch you so closely. The doctors say that the fluid is nothing to be alarmed about. This is common after a surgery like this. There was a lot of swelling after the surgery so now your body is trying to drain it all out. That is where the fluid in your lungs is coming from. If it doesn't start to drain on its own then they will just have to insert a small drainage tube right below your left lung. I hope we don't have to do that.

You haven't smiled yet. I keep waiting for that to happen. But I did get to hold you for the first time last night. I couldn't help but let a few tears fall. I was so grateful to have you back in my arms and that you are on the road to healing.

Being here makes me grateful for your good health. There are so many families here that are dealing with things that no parent should even have to think about. I truly feel blessed.







You are a fighter. I am amazed by the great progress you are making. We love you.
Love, Mom

7 comments:

Cori said...

Give her a kiss from me!! I'm glad she is making progress. And I hope you and Jo are doing good and getting enough sleep.

Chelsee said...

These pictures and your comments bring back so many memories of when Joshua was in the NICU. So many tubes and everything. Such a hard moment, but great to know that they are in such good hands and being taken care of 24/7. Good luck. We hope she makes a quick, healthy recovery!

Unknown said...

Atta girl Syd!! We love you!!

Jeff and Aubry said...

Hey, Nat - We just want you to know we are thinking of you! Little Sydney is such a cutie and we are glad to hear she is well on her way to having a happy, healthy heart!
-Aubry (Dial)

Natalie Moon said...

Aubry- I don't know if you'll come back and read these comments but I wanted to say thank you. I can't get to your blog so I guess this will have to do. Thank you for your support.

Jeff and Aubry said...

I did come back, Nat! I know you have a lot going on right now, but when you get a chance, send me an email to freckclan@gmail.com and I'd love to invite you to our blog. Hope things are still going well...we check here often for updates.

Jen Gillespie said...

YEA! She made it. what a strong little lady.

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