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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Thursday, August 5, 2010

Dear Sydney,
The exact thing that we have been trying to avoid these past few months has happened. Two mornings ago you woke up with a stuffy nose. I talked to the cardiologist about it and she said that as long as it is only a stuffy nose then they will go ahead with surgery. If the stuffy nose turns into something else, however, then I need to call her back and tell her. Sore throat, fever, or cough are all things that we are hoping to avoid. Today, I am thinking that you have an ear infection. First thing in the morning I am calling your pediatrician to get you into the dr and have them check you out.

With your surgery only being 5 days away I can't help but obsessively pray that this goes away before monday. Monday is when they do the blood tests to check your white blood cell count to make sure you are good and healthy. The last thing we want is for them to cancel the surgery. We are so close! If they were to cancel it, they would re-schedule the surgery for 3 weeks later.

Your health is more important to me than anything so if we need to push it back- that's ok. But we have prepared ourselves mentally for this to happen on Tuesday and I think it just might send me to the looney bin if it doesn't. But then again...I think this whole thing has already sent me to the looney bin so maybe its too late.

You don't sleep. We were awake with you for about 5 hours last night. We are exhausted and so are you. We can't lay you on your back or else you cry because it's hard to breathe so that means we either have to prop you up with pillows or just hold you. It is so hard to watch you struggle even more than you already do.

All those readers out there- I know we have asked a lot from you. But, if you could just add to your prayers a plead for Sydney's good health. Prayers work. He is listening. We are so grateful for you and your faith.

If you only knew how many people watch over you, Sydney. You are loved. Especially by me.

Love, Mom

1 comments:

Jed and Kera said...

Well I missed this post until just now because we were at my parents' house, but we will continue to pray for Miss Sydney and you both!

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