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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Saturday, August 21, 2010

Dear Sydney,
I found the camera! After a long search I finally found it underneath our bed. Let's just say that I don't keep our room as clean as I should! ;) Now that I have pictures to show you I thought I would show you all the ones I had of the people who came to visit you while you were in the hospital. There was quite a handful of people that came that I sadly didn't get pictures of but just know Michael and Laura Graham were there, Cori and Colin Bowler, Jared and Wendy and Brady Christensen, Great Grandma and Grandpa Edwards, Great Grandpa Moon, and Great Uncle Steve were there. Most of these people I didn't get picturse of them with you because I wasn't in the room while they were there. Your Dad had escorted them back to your room and taking a picture wasn't the first thing on his mind! And if I was in the room with some of these peoeple while they were there... I'm sorry. I can honestly say that I just forgot.











So many people love and support you, Sydney. Even if they couldn't make it to come and visit you. I have been overwhelmed as I continue to learn of more and more people that have been praying in our behalf.

You are recovering faster than I expected. You haven't taken any tylenol for the past 36 hours and you are as happy as you were when you were taking tylenol! Although you are a happy girl in the days...nights are a different story. You go to bed around 9 pm and then you stay asleep until around 1 am. After that you are up about every half hour after that. Before your surgery, you only woke up once a night but now that's a different story. I think you got used to having the nurses waking you up all through the night to check your vitals. I'll just say that this isn't our most favorite habit you have developed. But all it takes is one look at that sweet face of yours and somehow it makes it all better that we are up with you at all times of the night. I also think about when I couldn't keep you awake and how hard that was. I was so worried about you. Now it seems as though you have more energy than you know what to do with!

These next two pictures were taken on the day that we left the hospital. One is with our most favorite nurse that you had while you were there. Her name was Brita. I mentioned in an earlier post how great it felt to be leaving. Honestly, I felt spoiled that we got to leave so early. There were families there that had been in the ICU with their children for months. After being in the ICU for 3 days I thought I was going to go crazy. Jordan and I were invited to a lunch during one of the days we were in the ICU with you. The lunch was provided by the hospital for the parents of children who were in intensive care. Through talking with other parents and hearing their stories I realized that our little family was one of the luckier ones. There are literally children at that hospital who are breathing their last breaths and saying goodbye to their families. It is the most heart breaking scene. You don't realize those types of things are happening until you are there to witness it for yourself. I am amazed at the capabilities of the nurses and doctors who work with kids like you every day. They deal with a lot. Emotionally and physically.





We are so blessed. All of us are blessed. We have healthy bodies and have almost no restrictions to what we can or cannot do.

I love you.
Love, Mom

1 comments:

Jed and Kera said...

i'll have to leave a better comment later... dalton is crazy this afternoon! :O) just wanted you to know we are keeping up with you guys.

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