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I am doing it. I am starting the blog that has been in my head for a few weeks now. This blog is the story of my daughter, Sydney and how we, as a family cope with her heart problems. Sydney has a heart defect that will most likely require open-heart surgery. This will be about her progress, her struggles, mine and Jordan's struggles as we try to help her, what her days are like, and most importantly-the miracles, big or small, that occur in our daily life.I believe that my daughter was born with this heart defect for a reason. We are supposed to learn from this experience so I am using this blog as a way to write my thoughts, fears, worries, and joys that come as we help our daughter heal. There are days when I feel like I have so many different emotions that I am going to explode and fortunately a blog will keep me from doing that! Lucky for you. You are welcome to read this blog even if I've never met you! Feel free to make comments, tell your own story, laugh, judge me on my mothering, or to just cry. Whichever suits you best for whatever reason is fine with me! Enjoy the read...

Wednesday, September 29, 2010

Dear Sydney,
It has been so long since I last wrote on your blog. But now that your surgery is over, my thoughts and emotions aren't running around like crazy so writing has been put on the back burner...which I am sad about. I will do better.

It has now been 7 weeks since your surgery. Every day I am grateful that your surgery is in the past and no longer in the future. In our family prayers every night we always express our gratitude for your good health and your new heart. How lucky we are.

You went to the Dr. today for your 4 month check-up. Yes, yes, I know...you are 5 1/2months old. But there was a method to the madness. The cardiologist said that you weren't allowed to have any immunizations for 6 weeks before and after your surgery so we had to delay your 4 month check-up because you were supposed to get a few immunizations. Anyways...you are now in the 25th percentile for weight (which is incredible because before your surgery you were only in the 3rd percentile), the 25 percentile for height, and 75th percentile for your head! Ha ha...I thought your head was growing. It just goes to prove that it actually was! But it's ok Syd. Everyone on my side of the family has a big head too including me. So don't worry. People with big heads turn out all right. :) Oh and I failed to mention that you now weigh 13 lbs. 9 oz. Woo hoo!

I wish I had pictures to show of you. But the battery to the camera is dead and the battery charger is still in a box somewhere that I am yet to locate. But don't worry...you're still cute. In fact I think you have gotten cuter since your last photo-op.

Last weekend you spent time in Seattle with the Moon side of the family. We had so much fun. You met your cousin Chyanne for the first time and we discovered that you two have the same feet. Hopefully those feet treat both of you well. You can thank your Dad for those tootsies of yours!

Your sleeping is slowly improving. You probably wake up about every 2 hours now. It's better than every half-hour so we are not complaining. The other morning I woke up to you in our bed. I assumed your Dad put you there. Well- he assumed that I put you there. So really, we're not sure how you got in our bed. We were both so tired neither of us remember what happened that night.We don't even know who fed you in the middle of the night. At least we are all alive and well. Hopefully we won't have anymore of those kinds of nights. Oops.

We love you. You are our joy and bring so much laughter into our lives. I've missed writing to you. I'll do better.

Love always, Mom

Tuesday, September 7, 2010



Dear Sydney,
Today marks your 4-weeks-ago-you-had-heart-surgery day. 4 weeks! Can you believe it?! Yesterday was your first day off of all your medicines. You have been on medicine for almost your whole life so this is a big moment for us! For a while there, I was feeling like I was running a mini pharmacy right out of my mom's kitchen. It's just good to know that your body is now healthy enough to do things on its own.

Over the weekend we went up to Donnelly, ID and spent some time with the Hessing side of the family. We had so much fun. You had your first 4-wheeler ride which you obviously loved because it was always only a matter of seconds before you fell fast asleep. Maybe your Dad and I need to invest in a 4-wheeler in order to keep you asleep at nights. Ha. Right.







I do have to say, however, that your sleeping habits are getting better. Two nights ago you only woke up twice! We couldn't believe it! Last night wasn't as good but I am thinking that every week will get better and better. This may sound a little odd but I am grateful that I am complaining about how you don't sleep. You used to sleep too much and it was so hard to watch but now you have no interest in sleeping. Your little body just has so much energy now. So, this is a good thing. I just hope you get back into a regular schedule soon.

You rolled over for the very first time on Friday! We were so proud of you. You went from your back to your tummy. The only problem you had was trying to figure out how to get your arm out from underneath you. You haven't rolled since then but I'm sure it will become more and more frequent.

Yesterday afternoon I gave you a bath. After I got you all wrapped up in your towel I set you in your swing while I went upstairs to get your clothes. I turned on the TV to give you something to look at. Star Wars was on. You were captivated. Your Dad and Grandpa Moon would be so proud. :) It didn't take much longer though and you were asleep. You looked too funny to not take a few pictures...





Last night was the Boise State game. We had you all dressed up and you looked so cute! Your Aunt Mollie made you a really cute Boise State hair bow that matched Claire's. So you two were lookin' good with your bald heads and huge bows.





So, there's your update. You are doing so good. We're getting to the point where we can hold you underneath your armpits now. We couldn't do it for a long time because your chest bone was still trying to heal. I am loving that I can treat you like a normal baby more and more everyday.



We love you so much!
Love, Mom