Dear Sydney,
The past two days have been nothing but Dr. appt! That's ok though, at least we know they are keeping a good eye on you. Let's start with the first appt with the cardiologist.

Her name is Dr. Judd. They always start off the same- an EKG and then they put the blood pressure cuff on your arm and squeeze the heck out of it! The Dr. checked you over and said that she wants to keep the surgery where it is. (If you were doing good enough, they were going to push the surgery back further.) She said that your social skills and your fine motor skills are right where they should be but your gross motor skills are behind that of other children. I had always wondered if you should be rolling around and reaching for things by now but I wasn't for sure just because you are my first baby. Now I know that yes, you should be doing those things by now, but your muscles just don't have the energy they need to do those kinds of tasks. She said that your liver is still a little big but the medicine is keeping it from worsening. I told her about your sweaty hands and feet and how sometimes when I touch them, my skin is very wet with your sweat. She said that that is attributed to your heart.

The Dr. told us that after your surgery you won't be so pale and that your sweaty-ness will go away. She said that your gross motor skills will catch up with the other kids within 3 months after the surgery. We have to continue to keep you away from large crowds until 2 months after the surgery.

Then today you had a weight check. You gained 4 ounces this week! Woo hoo! That means that you are now 9 lbs. 11 oz.

I finally charged my camera battery so that means I have more pictures to show. Both of these were taken today...so cute! You have such big eyes!





Oh, how I love my little girl!
Love, Mom